Well being & Wellness E-newsletter – Jan. 2025


illustration of a kidney floating on a pool inner tube, sipping a drink.

I nonetheless bear in mind studying the “how one can perform with a spinal twine harm” handbook in rehab after my C7 harm. There have been a whole lot of issues I didn’t love about my new actuality, however one factor that hit notably laborious was the part about bladder management. Weirdly, the shortcoming to stroll, lack of sensation and poor grip energy had been all issues I might wrap my head round. However having to stay a tube into my bladder each two hours to pee? That appeared past the pale.

Ultimately, I got here to peace with my neurogenic bladder. But it surely took years of trial and error. First determining methods that labored in my on a regular basis life, then how one can adapt when touring, doing sports activities or the rest out of the odd. I want I’d had a useful resource that would’ve proven me what choices had been obtainable and the place I might discover out extra. That’s why we’re beginning this Well being & Wellness e-newsletter. Each month we’ll dive into a particular subject and provide the type of sensible data that may hopefully get you additional on the highway to a more healthy, extra useful you.

If you wish to lead an energetic life as a wheelchair consumer, calming bladder spasms is considered one of your first orders of enterprise. Decreasing spasms helps maintain extra in your bladder, reduces bladder strain and its kidney-harming issues, and offers you extra time to get to a rest room whenever you do must go.

Happily, there are a whole lot of choices for quieting a spastic bladder. Oral medicines are the least invasive and least costly choice however have essentially the most unwanted side effects. (I nonetheless can image the stringy white spittle that might kind in a wheelchair-using buddy’s mouth due to the quantity of Ditropan he used to take. Gross.) 

Trendy bladder meds like Myrbetriq do an excellent job of relieving spasms whereas lowering unwanted side effects, together with the dreaded mind fog that anticholinergic medicines like Ditropan can produce. The draw back to medication like Myrbetriq has all the time been value. So, a bit of excellent information: As of April 2024, Myrbetriq is now obtainable in generic kind. It’s nonetheless not low-cost (GoodRx has a 30-day provide listed at $117 at pharmacies close to me), nevertheless it’s a major discount for individuals who aren’t having success with different choices.

Different choices embrace one thing so simple as making use of an over-the-counter transdermal Oxybutynin patch. It’s the identical remedy that’s in Ditropan, however as a result of it’s absorbed via the pores and skin, unwanted side effects are diminished. Or you possibly can ask your urologist for a Botox injection. Copays can run you just a few hundred {dollars}, relying in your insurance coverage, however wheelchair customers typically swear by the process.

If none of that’s working for you, the subsequent step might be speaking to your urologist a few bladder augmentation, a reconstructive surgical procedure that may enhance bladder capability and cut back spasticity. Many wheelchair customers love the outcomes of augmentation as nicely, nevertheless it’s a full surgical procedure with the prices and restoration that entails.

“Some individuals deliberately dehydrate themselves whereas they journey due to restricted or nonexistent accessible washrooms. If you happen to day-dehydrate throughout your journey, drink 16 ounces or 2 cups upon waking and do a preventative pee earlier than leaving your lodging for the day. Whenever you get again, drink one other 50 ounces over the course of the night.”

Joanne Smith, wheelchair consumer
and licensed nutritionist

For wheelchair customers who don’t have any bladder management, the 2 most typical choices for taking a pee are to make use of both an intermittent or an indwelling catheter.

Intermittent catheter expertise has gotten quite a bit smarter lately. Hydrophilic coatings cut back harm to the urethra and get rid of the necessity to carry a tube of KY in every single place. Versatile sleeves with no-touch hand grippers provide help to keep sterility. Closed methods make it simple to take a pee in your van earlier than you head out into the wild world of questionably accessible restrooms. They’re all broadly obtainable, and the most important firms like Convatec, Wellspect, Coloplast and Hollister all have their variations.

One of the best place to see what’s obtainable is an occasion like Talents Expo, the place you possibly can go to all of the producers’ cubicles, see and contact merchandise, and determine which gross sales pitch strikes you as essentially the most affordable. You too can try producers’ web sites — all of them make it simple to request free samples. Take them up on it. All of the merchandise have small variations that may make an enormous distinction in how they work on your specific physique. For a product you employ as typically as a catheter, it’s price purchasing round.

Intermittent cathing doesn’t work for everybody, and lots of wheelchair customers go along with both a Foley or a suprapubic — an indwelling catheter inserted right into a surgically-constructed gap in your decrease stomach. The professionals are that they are often simpler to handle for somebody with restricted hand perform, and they are often useful for journey or different conditions the place you don’t know when or the place you’ll discover the subsequent accessible toilet. Excessive threat of an infection is a matter, in addition to harm to the bladder lining from all the time having a overseas object in there. Sediment will also be a significant challenge with indwelling catheters — simply learn Ian Ruder’s story of attempting to determine why his catheter saved getting blocked.

For anybody who wants an indwelling catheter however is worried concerning the issues of long-term use, try Ruder’s assessment of the TruCath Duo Twin-Balloon Urinary Catheter, which options two balloons designed to cut back irritation and harm to the bladder lining. “As somebody who’s handled extra bladder points than I care to recollect, the TruCath has provided much-needed aid and made it means simpler to get via the day with out dyreflexia or incontinence points frequently popping up,” Ruder says.

four image sequence of a male manual wheelchair user holding himself straight backed off his backrest, and moving one arm to different positions.
  1. Begin by sitting upright in your wheelchair. You probably have wheel locks, interact them. Put each arms in your knees.
  2. Utilizing your arms, pull your self up off your backrest so your backbone is straight and your shoulders are stacked on prime of your hips. Squeeze your shoulder blades and have interaction all of the again muscle mass you’ve gotten management over. Maintain for 30 seconds. Relaxation for 30 seconds to a minute after which both transfer to step 3 or repeat 2-3 instances.
  3. For added problem, carry one hand off your knee, holding your self upright with the opposite arm. Maintain for 30 seconds, relaxation, then swap arms and repeat. This variation is nice for steadiness apply and rising isometric energy in your engaged aspect.
  4. If you happen to’re feeling spicy, maintain your self upright with one arm and do energetic flexibility actions with the opposite. Overhead raises, single-arm clappers and huge arm circles all work — mainly any motion by which you’re bringing your shoulder via its full vary of movement. Shifting an arm whereas holding your self in a stacked place makes steadiness much more tough. However if you happen to maintain issues sluggish and managed, it’s an effective way to construct steadiness and stability even with restricted trunk management.

The Well being & Wellness e-newsletter is written by Seth McBride. A C7 quad since 2000, McBride is drawing on two and a half a long time of private expertise, seven years of incapacity reporting expertise, and a deep archive of New Mobility content material to translate complicated well being and wellness subjects right into a month-to-month narrative e-newsletter with one thing for everybody. Whether or not you just like the format and need to tell us, see one thing we missed or need to recommend a subject for us to cowl sooner or later, please attain out.


Assist New Mobility

Wait! Earlier than you wander away to different elements of the web, please contemplate supporting New Mobility. For greater than three a long time, New Mobility has revealed groundbreaking content material for energetic wheelchair customers. We share sensible recommendation from wheelchair customers throughout the nation, assessment life-changing expertise and demand fairness in healthcare, journey and all sides of life. However none of that is low-cost, simple or worthwhile. Your help helps us give wheelchair customers the sources to construct a satisfying life.



Leave a Reply

Your email address will not be published. Required fields are marked *